Landmark
Christian Elementary School in Fairburn recently conducted a fund-raiser
to benefit the National Marfan Foundation.
The campaign
was chaired by Cheryl Thrasher, the mother of Kevin, a fifth grade student
at Landmark with Marfan syndrome.
Marfan syndrome
is a genetic disorder that affects the connective tissue throughout
the body and very often also affects the heart and aorta. Many of the
physical characteristics include:
Tall, thin
stature with disproportionately long arms.
Long, double-jointed
fingers.
Unusually
long lower half of body.
Curvature
of the spine.
Chest bone
that curves either inward or outward.
Flat feet.
Nearsightedness
(lenses are prone to dislocation).
During the
fund-raiser, $9,246 was raised, which came from students, parents, family
and friends.
Early diagnosis
and careful management of a Marfan patient is essential, and the NMF
will use this money to disseminate accurate and timely information about
the condition to patients, family members and health care providers,
provide support for patients and their families, and support and foster
research.
For information
about Marfan syndrome and the NMF phone 1-800-8-MARFAN.